Honor has gained feeling in her right leg in the thigh and hip area its coming and going but she has felt it multiple times when we are tickling her. She has also felt us tickling her toes off and on we are back home now and just thrilled about all the changes she is experiencing. She also is feeling so good and she’s so much stronger it seems her energy level has skyrocketed and you can just tell she isn’t feeling as much pain. It has been so amazing to be able to touch her places she previously didn’t even know existed on her body and watch her look around and cry trying to figure out where it’s coming from. She feels it! It’s a whole new world for her now. It’s scary for me at the same time, I know she has been living with a broken femur and has escaped the reality of that pain now she must continue to live with it yet may feel some of that pain. Its been amazing to see her be so happy and full of energy. I’ve said it before and I’ll keep saying it…. God is soooo good. Thank you all for your support and kind words we are blessed to have such an amazing support system.
Nova’s Cells Institute (NCIM) doctors, scientists and other participants in its ever-evolving stem cell medicine program celebrate each and every improvement that surfaces in the people it treats. What follows below are links to 2 videos of little Alejandra which showcase the truly impressive post-treatment progress she has made. These videos were posted to Alejandra’s Facebook page by her Mum whose comments follow the link to each video.
Join NCIM as it celebrates little Alejandra’s ongoing journey to betterment and her recent improvements!
https://www.facebook.com/photo.php?v=508529795910803 (2 minutes, 38 seconds)
Antonella’s comment about this video of her daughter, Alejandra: 1 month post stem cells…I so wish I had a video of what she was doing before stem cells because you would not believe this progress…THANK YOU NOVA CELLS, MEXICO!
https://www.facebook.com/photo.php?v=508520542578395 (1 minute, 7 seconds)
Antonella’s comment about this video of her daughter, Alejandra This is how she is moving now…only 1 week after stem cells…THANK YOU NOVA CELLS, MEXICO! — at March of Dimes Canada.
On Sunday an NCIM press release on little Ryan Neighbors appeared on 3 PR services (24-7 Press Releases, Fire PR in the UK, and Free Press Release) and in the handful of hours since has created a bit of a positive stir. For one thing, Europe’s largest spina bifida charity picked up on tweets of the press releases and ran them on their main website at http://paper.li/SHINEUKCharity/1319719408. Many parents of children with spina bifida also picked up on the news release as well and one, Kara Underwood, whose son Bryson benefitted from treatment by NCIM, had this to say about Nova Cells on Facebook (Sunday 9-29-2013):
Best place on the planet for all your stem cell needs! They have the most caring team of patient coordinators and doctors around! Love them all to pieces! They are helping so many have a better quality of life! I praise God for Nova Cells Institute!
Email Kara at email@example.com
Want to know more about NCIM and its stem cell treatment program for spina bifida and other neurological issues? Call NCIM’s US information line at 1-562-916-3410 or email NCIM at NCInfodesk@gmail.com
Click this link to access the NOVA CELLS HEALING TOUCH newsletter, Spina Bifida Edition: http://ncimx.files.wordpress.com/2013/10/nova-cells-healing-touch.pdf
On November 13, 2012, we had the privilege of heading back down to Nova Cells Institute in Mexico for another stem cell treatment for our son Spencer. He has been doing great since the last treatment and we wanted to keep up his progress and see more improvements. We were excited because this treatment would be new for Spencer in the sense he would be getting stem cell “Beacon (or homing) Factor” which was developed by NCIM’s chief biochemist, Abel Pena.
The day was perfect! We enjoyed a leisurely breakfast and spent the morning by the pool basking in the sunshine and warmth. Abel and Grace picked us up at the hotel and it was like being reunited with family after more than a year. We made the trip to Tijuana in record time and got into the hospital where the doctors were waiting for Spencer’s arrival. Once we checked in, we were settled into our room and Spencer was taken to the OR (Operating Room) for his treatment. As usual, Abel was in the OR with him which helped him to relax.
Within 30 minutes or less, Spencer came back down and was taken to the recovery room. The MDs told us the procedure went well and he needed to lay flat for 30 minutes or so. Spencer was groggy and still wondering when he was going to get his treatment! We had to explain several times that his treatment was over and that he had received the stem cells. Within an hour, he was drinking juice and eating small bites of food (mostly Jell-O to feed the stem cells with some sugar). He generously gave his sherbet to his big brother and proceeded to play video games and watch movies.
By 4:30 pm we were able to get him dressed and ready to leave. Abel and Grace picked us back up and we headed out for dinner at a local restaurant. Following dinner, we visited a local shopping mall for a bit of Mexican atmosphere and treats, and then headed back across the border into the US. Everything went so smoothly – we know God was with us the entire time!
Since the procedure, we have seen so many changes in Spencer from growth spurts to more muscles firing. His legs are better aligned in his hips – specifically, the muscles in the right leg are firing evenly instead of pulling his right leg outward. He has started to bend his left knee and wiggles his toes more and it is much easier for him to get to his knees and maintain a kneeling position. He even told me last week that “he is wiggling his toes” when he usually says “my toes are wiggling”. The changes we see are new and exciting and seem to be happening with each and every passing day.
We thank God for the knowledge and caring hearts He’s given to Abel and Grace Pena and all the people connected with NCIM. We are also thankful that we’ve been able to take Spencer for two treatments and can’t wait to see what new things he’s going to do tomorrow and the day after!
My name is Kristin Smith and my 2 ½ year old son, Gabe, has myelomeningocele type spina bifida affecting the L3-L4 region of his spine. He also has a VP shunt in place. When he was 1 ½ years old we took him to China for his first stem cell treatment where he received eight (8) intravenous IV treatments with umbilical cord stem cells along with acupuncture, physical therapy, fire cupping and massage. The cost was $30,000 USD. Prior to this treatment Gabe was unable to use his legs and had low hip movement as well as low sensation and poor blood flow in his legs and feet. Following his treatment he was able to move his hips enough to use an RGO brace (which basically supports his legs and moves them once he initiates movement with his hips) that allows him to walk with a walker. In addition, he had greater sensation to his knees and was able to support himself on his knees while holding onto something. He also experienced more sensation in his penis.
In May 2012 we went to Tijuana, Mexico for his second stem cell treatment with Nova Cells Institute (NCIM). We had heard many wonderful things about this group especially with regard to the rapid results that families were seeing in their spina bifida-afflicted children following treatment with Nova Cell’s primed stem cells. At the same time we also heard many negative things about the north Baja area, as I’m sure most people from the States have, e.g., violence, kidnapping, dirty, dangerous, etc. We went despite the rumors and are so thankful that we did! To our surprise Tijuana is very clean, full of nice people and a lot of uniformed young children walking around and playing after school. We ate in a local restaurant around 8 pm and never for a second felt insecure or in any danger whatsoever. It was the opposite of what we were told by well meaning friends and other who were basically just speculated wildly. We had great food and while waiting to cross the border (back into the US) were able to buy some great souvenirs from the local people who were working hard to support their families.
As for the treatment itself, NCIM staff picked us up at our hotel in San Diego and were simply the best hosts you could ever hope to find. Once at the clinic, our son did not cry when we handed him to the doctor because NCIM’s Dr. Abel was in the OR with him throughout the entire procedure which made him feel totally at ease. The procedure went perfectly and his legs almost immediately warmed up (better blood flow) which made both he and us so very happy.
Within the first week after Gabe’s treatment we began seeing improvements. Among them:
☺He was able to consistently crawl while pulling his legs underneath himself.
☺He was able to climb up 10 stairs without help, pulling his legs up all by himself.
☺ Also, his therapist realized that he was no longer relying on his RGO to move his legs, but was using his own leg muscles to walk!
All of these gains represented firsts for Gabe, mind you.
Now it has been almost two (2) months since our treatment and he is moving his legs from the knee, and has a lot more strength. He has more sensation further down his legs and is a lot faster and more mobile. Also, he is able to move around during play in ways that he never could before.
I would be remiss if I did not point out the vast difference between Gabe’s treatments in China and then Mexico (Nova Cells): The Chinese stem cell & other treatments took place over many weeks, cost $30K USD, and produced some modest physical improvements. The Nova Cell’s primed stem cell treatment took a single day, cost far less than the Chinese treatment, and produced very impressive improvements in Gabe literally coming out of the gate and continuing to this very day.
To say we are all more than delighted with Nova Cells and the wonderful people who make up the NCIM family is an understatement.
Readers should feel free to contact me at firstname.lastname@example.org but please put something in the subject line pertaining to stem cells so I do not think it is spam.
JULY 21, 2012 VIDEO OF GABE: http://www.youtube.com/watch?v=u4xsGl926yo&sns=fb (28 seconds)
ADDITIONAL VIDEOS OF GABE CAN BE FOUND BY CLICKING THIS LINK: https://www.youtube.com/results?search_query=mospina85
REGULAR UPDATES ON GABE’S PROGRESS ARE POSTED TO “GABE WILL WALK” ON FACEBOOK: https://www.facebook.com/#!/GabeWillWalk?fref=ts (NOTE: You will need a Facebook account to access this community page. If you do not have a Facebook account you can easily set one up by clicking this link https://www.facebook.com/r.php?locale=en_US)
Want to know more about NCIM and its stem cell treatment program for neurologic issues in children and adults? Call NCIM’s US information line at 1-562-916-3410 or email NCInfodesk@gmail.com.
I brought my son, Bryson Chailer, to Mexico during April (2012) for his first stem cell treatment and I just wanted to give you an update. First of all, let me say, Grace and Abel Pena are two of the sweetest, most caring, most hospitable people I have ever met. They are genuine and truly care about their patients and made our experience top notch. The Mexican doctor and his team and the nursing staff were all fantastic as well. We were treated professionally and with love and everything was explained to us so we could understand every single step of the entire process. We couldn’t be more impressed and will send people your way because of our wonderful experience with Nova Cells Institute.
Within 48 hours of his treatment I saw changes in Bryson and want to share these with everyone: I noticed right away that he had more energy, which is almost unimaginable, because he was already a little fire ball anyway, but he was wound for sound after the stem cell implantation! I noticed right away that he slept more soundly that night and was not tossing and turning and having interrupted sleep. He slept this way last night as well. Bryson has a vesicostomy due to bladder issues, reflux into his kidneys, and the catheter not working properly. This is temporary and to give his bladder a rest and time to repair and will be reversed. Since he urinates out of the stoma, his diaper is wet only at the top and I noticed the morning after the stem cells, his diaper was wet from top to bottom, which I think means he had been urinating, not only from the stoma, but from his penis as well. His diaper was just saturated all in the front. I noticed this same thing this morning. He pooped in the middle of the night and had not been given any kind of stool softener or enema, which is usually what we have to do to get him to poop. He pooped this morning without any enema also. His appetite has increased tremendously. He is eating more food and more often.
Also, more recently Bryson has begun having movement in his right foot and toes! He has always had movement in his left foot and toes, but never on his right foot and toes (Bryson’s level of spina bifida is at L1-L5, so he is paralyzed from the waist down). Having movement in his feet and toes is astounding! I don’t think he has any sensory or sensation yet, but he definitely has something going on to have movement. He wiggles his toes when I run my nails down the bottom of his feet. He is actually responding to the Babinski’s reflex test, which makes your toes flex outward when stimulated.
These are just the few things I’ve seen in my son since his treatment by NCIM. I will let you know of any other improvements as they happen.
You can read more on a blog site set up to showcase Bryson’s story and especially his response to his treatment with adult (nonembryonic) stem cells: http://www.stemcellsforbryson.blogspot.com/
FACEBOOK ENTRIES (2012)
Just wanted to share some progress I saw in Bryson last night! I noticed when he was on his tummy, he lifted his right leg off the ground and held it there for quite some time! I was just sitting there watching in amazement! Both of his legs are moving like crazy at night too!
My mom and I were at Alco today letting Bryson pick out a toy and when he rides in the shopping cart, his legs usually just hand down and dangle, but he actually straightened his left leg from the dangling, bended position! Mom and I both just looked at each other and I bent it back down and he lifted it again, and again! One happy momma and one happy Nana! Praise God for taking the stem cells right where they need to be! Bryson continues to make progress every single day!
Such great news to share!!!! Bryson just went to therapy and the therapist says his left leg is definitely moving and extending by using his quads and hamstrings that are firing! Also, his right hip flexsor is firing! God is making the stem cells work quicker than we could ever even imagine! To God be the glory!
Take That Spina Bifida!!!!!
Bryson doing leg lifts. This video was uploaded from an Android phone
Knew I would get a good report from the therapist! It just keeps on getting better! Bryson now has slight firing in his left hip! So, he has active hamstring and quad function in the left leg, now slight firing of the left hip, active firing in the right hip, and movement in both feet and toes! God is so good and thank you Jesus!
Update on Bryson since stem cell treatment! WARNING-may contain too many details and too much information! Lol!
Because Bryson has spina bifida, he has what’s called neurogenic bladder and bowel. This means the nerves don’t get signals to the brain to go potty like everyone else, so he has to take stool softeners and laxatives on a daily basis in order to go potty. He is currently refusing to take his meds and I have tried everything and I was at my wits end, so I’ve just left it in God’s hands for the past several days, and without any medication, he has pooped totally on his own, with no stool softener or laxatives! He also felt stomach pains for the first time ever from having diarrhea, which should not happen to someone who is paralyzed from the waist down! This may not sound exciting to most people, but to a mom of a child with spina bifida, this is huge! Go stem cells go! I’ve never thanked Jesus for poop and a stomach ache before, but you bet I am now!!!!!
I’m one excited momma right now! Bryson just crawled on his hands and knees for the first time! He crawled 4 big steps before his legs gave way! He has never done anything but army crawl, using his arms, with his legs dragging behind him! He actually crawled on on his hands and knees by sitting on his knees and pulling them forward by using his legs! Yay! My God is so good all the time! Thank you Jesus for your continued healing! Go stem cells go!
My little man just crawled on his hands and knees about 6 feet without stopping! Praise God! Can I get a woot woot!
Thanks to God and Nova Cells Institute, Bryson is doing better than ever after his stem cell treatment and he is walking so great in his RGO braces now!
VIDEO: Go Stem Cells Go!!!!
“Bryson’s Story” an 8 minute, 40-second video compilation “showing progress from birth until stem cell treatment in 2012”: http://www.youtube.com/watch?v=JqySzJ7smKA&feature=share
Praying for Mama! God is still the Great Physician and Healer and the bible says that if you are all believing in total healing, and you are all standing in faith together, your Mama will be healed! Something to think about that will make a huge difference in her quality of like is stem cell treatment. Stem cell transplants are doing phenomenal things for so many diseases today and my son, age 3, who has spina bifida and is paralyzed from the waist down, got stem cell treatment 3 months ago and he is already seeing major results! He is moving his toes, crawling on his hands and knees and is walking in braces with a walker now! He is also off all medications as well! God led us down the path of stem cells for our son and He is making sure those stem cells go right where they need to be in his body and my son is being healed more and more every day! Praise God! God bless your entire family and you are all in my prayers, especially Mama 🙂
Bryson is getting so good at walking in braces with his walker! Miss Elsie is just there for added support and barely has to touch his walker now! He’s doing all the work totally on his own! I am so proud of my little man! We were told Bryson would absolutely NEVER do this and look at him go! Praise God! Nova Cells Institute and their stem cells rock!
LATEST VIDEO: http://www.youtube.com/watch?v=3yggQiXU_wA&feature=share
Monday, August 20, 2012 – Rural TV Feature on Bryson and Donation Information!
LATEST ENTRIES ON BRYSON’S BLOG– 2013
Thursday, February 14, 2013
It’s been so long since I’ve posted and figured it was about time to stop my busy life for about 5 mins to give an update! Shame on me for not taking time until now! Let’s see….. Bryson is still continues to make progress after his stem cell treatment last year and he is walking so great in his RGO braces, using his walker. He’s really become quite the pro at it actually! He still has the vesicostomy in place, but we have been noticing that his bladder capacity seems to be increasing, which is great news. He is crawling on all fours these days and is getting so much stronger and is able to do just about anything. He has a wheelchair now for his main means of getting around, but he tells us that when he gets bigger and is grown up that he will not need his wheelchair because he will be able to stand and walk on his own! We love his positive outlook! He tells his legs, “In the name of Jesus, move legs!” He is commanding that mountain to move just like the bible tells us to! We are very excited to announce that we will be taking Bryson back to Nova Cells Institute in Mexico on April 9th for his second stem cell treatment. We can’t wait to see what results this second round of stem cells brings for him. We will most likely take him to an intensive physical therapy program in another state about 4 to 6 months after the treatment this time. The planning is already in full-swing for the 3rd Annual Barrels for Bryson event and it will be held in September of this year. This one will be even bigger and better than the last one! God has blessed us so much in the past year and we see bright things ahead for our future! We give Him thanks, praise, honor and glory for ALL these blessings and for ALL future blessings! Our faith in God’s healing for Bryson is still as strong as ever and we know God has many great things planned for our sweet baby boy. Bryson is growing up to be a mighty man of God and we know that God will see to it that he prospers in everything he does in life. Reports of more progress to come after the treatment in April, so stay tuned!!!!!
Posted by Kara Underwood
Saturday, August 24, 2013
We have been busy, busy, busy this year! Bryson has made progress by leaps and bounds and he actually starts pre-k on Monday. My goodness, where has the time gone? Our lil guy is growing and getting so big and has been crawling like a champ these days, and I don’t mean army crawling like he used to, I mean crawling on all fours, and he stays on his knees most of the time. This is such progress! He has gotten so much stronger and his balance is improving more and more and his core and lower back are getting stronger as well. His cognitive skills are through the roof! He is so very smart! He continues to walk great in his RGO braces and uses the walker like a pro. The 3rd Annual Barrels 4 Bryson event is just around the corner in September and we are praying for a super turnout so we can purchase a much-needed piece of exercise equipment for the house. He needs an exercise bike called the RT-300 that uses e-stim (electric muscle stimulators) for his legs to gain some muscle mass. All the weight-bearing in the world and all the stem cells in the world won’t do any good if he doesn’t have the muscles in his legs and hips to support his weight, so he needs this therapy equipment desperately. Of course, nothing is covered by any insurance and it’s quite costly. $26,000 to be exact! Yikes! Please be in agreement with us in asking the Lord to supply our financial needs this year. God has blessed us so much and we know he hears our prayers and we thank Him and glorify Him always! Bryson’s bladder seems to be gaining capacity way more with this stem cell treatment and he sometimes even poops all on his own, without having to do the enema. Yay for pee and poop! Oh, the things that excite and impress a mom of a kid with spina bifida! We are so excited to see what God has in store for Bryson throughout his life. We know for a fact God has healed Bryson and continues to show us His healing more and more every day, as He is placing those stem cells right where they need to be in his body for healing and growing nerves. Bryson can totally lift his left leg all the way in the air and he continues to move his toes and feet. He even pulled his right leg so hard when getting a diaper change that he pulled it right out of my hand! He has so many little twitches and movements that he didn’t have before and it’s so exciting to see these changes. We are about to start hippo therapy (horseback riding) in the fall and after the barrel race, he is going to be getting a new type of therapy called the Anat Baniel Method, which the therapist manually manipulates the muscles to try to re-route signals to the brain to make the legs move. This is gonna be an exciting year with more exciting things to come! The ABM, along with the therapy bike should make significant improvements for Bryson and we can’t wait to witness what God has planned for our little trooper! Bryson never ceases to amaze us with his growth and improvement throughout his short life. He is definitely a mover and a shaker and has big plans. God has used Bryson, our family, and our experiences to help and improve the lives of others and we couldn’t be happier that He chose us in this way. We are so very proud of this brave little boy and we are so glad God chose us to be his parents. Bryson has truly made us better people and has changed our lives for the better in every way. I promise I won’t take so long to report Bryson’s progress next time! Maybe I can get a few things done now that the little toot will be in school 3hrs a day! Lol! Until next time, always remember…….All things can be done through Christ who strengthens us! God bless you and love you!
Posted by Kara Underwood
Friday, October 25, 2013
We are so excited about an upcoming event for Bryson that’s about to get underway! A Mane Event Stallion Auction will be held on Nov. 11-23 and all proceeds will go toward a very expensive piece of medical equipment Bryson needs to build the muscles in his legs so he can have the muscular support needed for weight-bearing and walking. There are some AMAZING stallions up for auction and we are floored by the response we have gotten from the stallion owners who have so generously donated them. The GigerMd is a therapy bicycle that combines mild estim for muscle-building and it costs a whopping $26,000! Yikes! Things like stem cell treatments, alternative therapies, therapy equipment, and things of that nature are not covered by insurance but are so needed for Bryson’s ability to walk in the future. The 3rd Annual Barrels 4 Bryson event was a huge success and we raised enough money for the $16,000 stem cell treatment he needs and we are so very thankful for everyone who donated and everyone who participated and made that event possible. God has blessed Bryson so much with these fundraisers so he can continue to get the things he needs to make his quality of life better and they help him to achieve his dream of walking one day. We serve an awesome God, don’t we? We would like to thank Dr. Wes Williams for his continued support in the Barrels 4 Bryson event and we want to extend a huge thank you to Erin Kemp, Crystal Nichols, my mom, Kathy Russell, and my niece, Kenzi Pogue for putting this new annual event together for Bryson. We would also like to thank Arron Watson, a very talented song-writer and Texas country artist, for taking notice of this event and generously donating a signed guitar for this auction. Also, for the people who have donated other items for people to bid on. We love you guys! It blows us away at the amount of support everyone has shown and continues to show, Bryson. He WILL WALK and we thank everyone who has been a part of his journey. We would never be able to afford these things for him without the generous donations of everyone involved in these events. God bless all of you and thank you so much from the bottom of our hearts! May God richly bless each of you!
Posted by Kara Underwood
Want to know more about NCIM and its stem cell treatment program for neurologic issues in children and adults? Call NCIM’s US information line at 1-562-916-3410 or email NCInfodesk@gmail.com.
If you have not done so please read the “Spencer Tomc” story: http://bit.ly/n333qh
UPDATE on Spencer sent NCIM on 10-20-2011 from Mrs. (Jennifer) Tomc:
We had an appointment with Spencer’s Neurosurgeon this morning to follow-up on his tethered cord. His exact words as we were leaving were, “I would chase you away from detethering surgery with a whip.”
Great news for us for sure! We thank God and each of you for the supplements and therapies and support and information to turn this around for Spencer. We will continue all of these to continue his healing.