Tag Archives: programmed stem cells

The Rikky Foresman saga continues: “Rikky is standing!”

Blazin for Rikky – March 3, 2014

https://www.facebook.com/BlazinforRikky

Rikky is standing!!!

Rikky is standing - March 3 2014

READ MORE ON RIKKY FORESMAN AT http://ncimx.wordpress.com/?s=Foresman 

The Angel Sosa saga continues: 24 days without a tonic seizure and counting!

Angel SosaCHECK OUT THIS EXCITING UPDATE POSTED ON ANGEL SOSA’S FACEBOOK PAGE (3-3-2014) 

Since having done stem cells February 6, angel went 24 days without a Tonic seizure!! Before stem cells he was having them everyday 2-4 a day. It only lasted a couple seconds and recovered great afterwards. And with the cluster of infantile spasms some days it seems like there’s none and other days he will have 1-2 maybe lasting only a couple seconds and before he was having 2-4 clusters a day lasting 6-10 mins everyday!! I have also completely weaned him off zonegran his last dose was February 28. So now he’s only on 2 meds depakote and felbamate.

https://www.facebook.com/angel.sosa.52?fref=ts%20

YOU’LL FIND AN EARLIER ENTRY ON ANGEL AT http://ncimx.wordpress.com/2014/02/16/epilepsy-turnaround-for-an-angel-angel-sosa/

Central sleep apnea episodes fall from 66 per night to 7 in Ryan Neighbors, reports mom (Shelly)

Ryan Neighbors - 1 of 4 - January 2014IN A FEB. 10 2014 EMAIL TO  NOVA CELLS INSTITUTE, SHELLY NEIGHBORS SHARED THIS EXCITING NEWS ABOUT HER DAUGHTER RYAN: 

I have so much to tell you and show you!

Ryan is moving her legs on her own CONTROLLED!! We’re not walking – but this is a step in the right direction.

Not only that – but she recently had a sleep study to check on her central sleep apnea. Before stem cells, she was having 66 episodes per night. After we Only had 7! They are thinking about taking her off her oxygen!

We hope to see you all again before this fall. I have videos to send but I’m at the gym. I send them when I get home. We love you and hope all is well.

Xoxo
Shelly Neighbors

CHECK OUT THESE PRIOR BLOG ENTRIES ON RYAN: http://ncimx.wordpress.com/?s=Ryan

Epilepsy turnaround for an angel (Angel Sosa)

Angel Sosa is 4 years old and has not exactly had an easy ride in life. Born to loving parents and a large family he entered this world saddled with lots of neurological  and physical challenges. Among them:  Infantile spasms, a  difficult-to-treat form of childhood-onset epilepsy called Lennox–Gastaut syndrome (LGS) or simply Lennox syndrome, and developmental delays. According to his loving Mum, Monique, he was ““having 10 clusters of 10-11 seizures lasting six (6) minutes each day and was having ten tonic seizures a day sometimes lasting up to 3 minutes without breathing.”

As you might expect little Angel’s early life was spent seeing doctors and therapists and taking drugs to control his epilepsy (Three currently: Felbamate, Valproic acid, and Zonisemide). Naturally, his parents kept an eye on the news and the Web for any medical advances that might offer any hope of remediating their son’s intractable epilepsy and other challenges. With the advent and growth of adult (nonembryonic) stem cell treatment programs outside the US they saw evidence that perhaps some form of stem cell therapy could help their little boy. As they sorted through the various private stem cell medicine operations abroad they came across accounts of the many turnarounds in children effected by Nova Cell’s primed stem cell treatments and intravenous use of its proprietary Beacon Factor. This encouraged Monique to reach out to NCIM patient educator & care facilitator, Grace (Ph.D. candidate), by phone. Grace then walked her through what NCIM doctors and scientists had accomplished and documented in treated patients and then ably tackled all her questions and concerns. Satisfied with what she had learned, the Sosa’s, enrolled their son in the NCIM treatment program and read the patient handbook (This link is to the abridged version of NCIM’s patient handbook. Those who wish to access the full version must register). Later, on the heels of Angel’s approval for treatment by NCIM physicians including a pediatric neurologist, she and her husband booked him for care on 6 February (2014).

When the “big day” arrived for Angel, Grace noted this about the little boy:

While waiting for his treatment Angel was very stiff and somewhat arching backward. His eyes were moving around the room randomly and, though he would look at you if you called his name after a couple of times, he did so only for a split second and it seemed that he saw right through you. His mom had to give him his dose of medications because he was getting a little more stiff and she knew they were wearing off.

Angel SosaAngel was then given primed umbilical cord stem cells and the Beacon Factor. Grace noted this at the time:

About an hour after his stem cell treatment Angel’s mom mentioned to us that both she and his father were impressed with how relaxed Angel is including his normally stiff legs. As the attending physician was checking him in recovery Angel did something amazing: He fixed his gaze on him for about 5 seconds. The doctor was both amazed and incredulous. Then Angel’s father said ‘Oh yea, he already has focused  his gaze on his mom and I.’  Within an hour Angel was already aware of his surroundings and the people around him.

In addition, Angel’s legs which were normally ice cold were now pink and warm and remained so.

After Angel got home and settled in Monique shared this with Grace by phone and later by email:

The Thursday morning of his stem cell treatment he had 3 tonic seizures and then after stem cells no more seizures till late Sunday night he had 2 small quick seizures. All this week he’s only had 3 seizures! And no big seizures at all! No more 6 minute clusters 🙂

In therapy his therapists have noticed improvements already! He feels so much stronger! He is tolerating standing a little more and one of his therapists noticed he was using the muscles on his arm and shoulders. Everyone has noticed that he’s more alert and happy and has more energy! On Tuesday he looked at me and smiled Mind you, he has never smiled for no reason.

Monique added that Angel’s three (3) year old sister was super excited by the fact her brother was following her all over the place with his eyes, something she instinctively regarded as a form of playing with her.

She concluded with this:

Thank you NOVA!!! I’m so excited about seeing more gains with my angel! Thank you Grace and Abel!

The Sosa’s have set up a  Facebook page for Angel which is at https://www.facebook.com/angel.sosa.52?fref=ts. This page contains photos, videos, posts and more.

CHECK OUT THIS EXCITING UPDATE POSTED ON ANGEL SOSA’S FACEBOOK PAGE (3-3-2014):

Since having done stem cells February 6, angel went 24 days without a Tonic seizure!! Before stem cells he was having them everyday 2-4 a day. It only lasted a couple seconds and recovered great afterwards. And with the cluster of infantile spasms some days it seems like there’s none and other days he will have 1-2 maybe lasting only a couple seconds and before he was having 2-4 clusters a day lasting 6-10 mins everyday!! I have also completely weaned him off zonegran his last dose was February 28. So now he’s only on 2 meds depakote and felbamate.

Want to know more about NCIM and its stem cell treatment program for neurologic issues in children and adults? Call NCIM’s US information line at 1-562-916-3410 or email  NCInfodesk@gmail.com.

Do you believe in miracles? If not, read this!

Little Rikky could not feel anything below his knees but started doing so in the first few hours following his Nova Cells treatment! 

POSTED BY RIKKY’S FOLKS ON THEIR LITTLE BOY’S FACEBOOK PAGE ON 1-8-2014 (Link further down below)

Check it out! Rikky had no feeling below his knees prior to the treatment! This is 30 minutes after he came out of the O.R. and we will see results for 6-8 MONTHS!

If you didn’t believe it before when we said it was going work then watch this!!!

CLICK PHOTO TO WATCH THE VIDEO (RIKKY’S FACEBOOK PAGE)

I just want to scream from the freaking rooftops, I am so full of joy and thankfulness! It  exceded whatever I imagined to happen, just seeing hime moving his left leg is giving me chills over and over and over and over again! AND HIS LEGS ARE LOOSEY GOOSEY!EVEN MORE THAN AFTER THERAPY!!!!!!!!!!!!!!!!!!!!!!!

And posted tonight (1-8-2014) from SEAWORLD in San Diego at around 7 pm Pacific Time:

“FEEL MY LEGS, DAD”. So we are sitting watching the dolphin show and Rikky says this because he has shorts on and it’s a little chilly (we all have shorts on btw). He NEVER felt his lower legs before!

And posted to Rikky’s Facebook page on 1-14-2014:

Blazin for Rikky

Went to Rikky’s PT she is amazed at Rikky’s progress from the stem cells! She says it is unbelievable and she is going to write a letter that says how the stem cells worked so well on Rikky. She has been his PT since he was 2 months old, and she has been a PT for over 30 years. She is quite amazed! This makes me quite joyous because she validates what I have been seeing and I know now that I am not imagining things! This is only ONE WEEK after treatment, we will still have progress for 6 MONTHS!! This is so wonderful! I am so glad we decided to do this! I hope more people will see this progress with Rikky and get this for their kids too! I highly recommend NOVA CELLS INSTITUTE!!! THEY HAVE CHANGED OUR LIVES!!!!!!

POSTED ON 1-24-2014 ON RIKKY’S FACEBOOK PAGE:

Blazin for Rikky

OK, we seriously just went to ER because I haven’t been able to get a catheter in. The ER dr says he is voiding on his own and does not need to be cathed so call his uro Dr and get the tests done to be sure, but he is completely voiding ON HIS OWN!!!!!!

Check out Rikky’s FACEBOOK page at https://www.facebook.com/BlazinforRikky (Videos, posts, comments & more)

 

                  

Update on Ryan Neighbors by her Mum, Shelly (Includes a link to a recent video of Ryan and 4 photos)

New video of Ryan standing ALMOST all on her own:

https://www.facebook.com/photo.php?v=10202462548192683&l=1269382276310712012

We are starting fundraising again this weekend. and our goal is to be back (to Nova Cells) by this summer/fall

Ryan’s core strength is MIND BLOWING. She’s breathing so much better and eating all sorts of different foods. She is also writing her name and is able to stabilize her  trunk and balance when in a crawling position and when standing. Her legs aren’t doing as much as we hoped, BUT she has gained so much strength in her core and in other places I never even thought of it helping her legs. I know for a fact we wouldn’t be where we are today without your help and the stem cells. Hopefully a 2nd round will do much more.

We love you guys and can’t wait to see you again.

GOD IS GOOD. Love you guys MUCHO!!!!

Shelly Neighbors

AND IN A FEBRURY 10, 2014 EMAIL SHELLY HAD THIS TO SHARE WITH NCIM’S GRACE:

I have so much to tell you and show you!

Ryan is moving her legs on her own CONTROLLED!! We’re not walking – but this is a step in the right direction.

Not only that – but she recently had a sleep study to check on her central sleep apnea.  Before stem cells, she was having 66 episodes per night. After we Only had 7! They are thinking about taking her off her oxygen!

We hope to see you all again before this fall. I have videos to send but I’m at the gym. I send them when I get home. We love you and hope all is well.

Xoxo

Shelly Neighbors

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Honor Tinsley: Little girl with spina bifida gets feeling in parts of her body that were previously “dead”

FROM THE “WALL OF HONOR” FACEBOOK PAGE CREATED &  MAINTAINED BY HONOR TINSLEY’S MUM:
Honor has gained feeling in her right leg in the thigh and hip area its coming and going but she has felt it multiple times when we are tickling her. She has also felt us tickling her toes off and on we are back home now and just thrilled about all the changes she is experiencing. She also is feeling so good and she’s so much stronger it seems her energy level has skyrocketed and you can just tell she isn’t feeling as much pain. It has been so amazing to be able to touch her places she previously didn’t even know existed on her body and watch her look around and cry trying to figure out where it’s coming from. She feels it! It’s a whole new world for her now. It’s scary for me at the same time, I know she has been living with a broken femur and has escaped the reality of that pain now she must continue to live with it yet may feel some of that pain. Its been amazing to see her be so happy and full of energy. I’ve said it before and I’ll keep saying it…. God is soooo good. Thank you all for your support and kind words we are blessed to have such an amazing support system.

https://www.facebook.com/photo.php?fbid=477748105671842&set=a.279573335489321.61900.278496448930343&type=1

2 new videos of little Alejandra (spina bifida) reveal impressive progress!

Nova’s Cells Institute (NCIM) doctors, scientists and other participants in its ever-evolving stem cell medicine program celebrate each and every improvement that surfaces in the people it treats. What follows below are links to 2 videos of little Alejandra which showcase the truly impressive post-treatment progress she has made. These videos were posted to Alejandra’s Facebook page by her Mum whose comments follow the link to each video.

Join NCIM as it celebrates little Alejandra’s ongoing journey to betterment and her recent improvements!

https://www.facebook.com/photo.php?v=508529795910803 (2 minutes, 38 seconds)

Antonella’s comment about this video of her daughter, Alejandra: 1 month post stem cells…I so wish I had a video of what she was doing before stem cells because you would not believe this progress…THANK YOU NOVA CELLS, MEXICO!

https://www.facebook.com/photo.php?v=508520542578395 (1 minute, 7 seconds)

Antonella’s comment about this video of her daughter, Alejandra This is how she is moving now…only 1 week after stem cells…THANK YOU NOVA CELLS, MEXICO! — at March of Dimes Canada.

 

Celebrating “Spina Bifida Awareness Month” with 2 patient success stories

Nova Cells Institute is celebrating “Spina Bifida Awareness Month” (October) with a  news release showcasing Danielle “Dani” Smith & Alejandra Germanese. Join us in honoring these 2 by going to http://www.24-7pressrelease.com/press-release/nova-cells-institute-announces-spina-bifida-advances-364003.php

http://www.24-7pressrelease.com/pdf/2013/10/05/press_release_364003.pdf  – PDF version

Abel at lab cabinet

Ryan Neighbors News Release on “The Shine” (Europe’s largest spina bifida charity)

THE SHINE - 9-30-2013On Sunday an NCIM press release on little Ryan Neighbors appeared on 3 PR services (24-7 Press Releases, Fire PR in the UK, and Free Press Release) and in the handful of hours since has created a bit of a positive stir. For one thing, Europe’s largest spina bifida charity picked up on tweets of the press releases and ran them on their main website at http://paper.li/SHINEUKCharity/1319719408. Many parents of children with spina bifida also picked up on the news release as well and one, Kara Underwood, whose son Bryson benefitted from treatment by NCIM, had this to say about Nova Cells on Facebook (Sunday 9-29-2013):

Best place on the planet for all your stem cell needs! They have the most caring team of patient coordinators and doctors around! Love them all to pieces! They are helping so many have a better quality of life! I praise God for Nova Cells Institute! 

Email Kara at karalinunderwood@gmail.com

Want to know more about NCIM and its stem cell treatment program for spina bifida and other neurological issues? Call NCIM’s US information line at 1-562-916-3410 or email NCIM at NCInfodesk@gmail.com